SYNDROME D’EHLERS DANLOS : NOUS DISONS NON A L’ARRET DU DIAGNOSTI


Visiteur

/ #472

2013-07-30 20:34

Here in Canada we are trying to put in place what France already has, someone specialized in EDS, yet France is about to take a giant step backwards.

How can you have a motto "Liberté, égalité, fraternité" when you are denying those with Ehlers Danlos Syndrome the freedom to proper treatment, equality with those who receive treatment for conditions such as cancer and heart disease, why should only a limited number of disorders get the care they need? Brotherhood, to be able to share with people who also have similar disorders. I fail to see how France is upholding their motto in the issue of rare disorders.